29 May 2006
25 May 2006
I am being tested. I have been tested before and I always seem to come out the other side albeit not totally unscathed but I do survive. So I will go see the surgeon on the 15 June and if it is a bit of cancer then we will do what we need to do to get rid if it. So many times before in my life it's just something else to deal with and deal with it I will.
21 May 2006
Recently around this past Christmas and up to and continuing through now the neuropathy has been acting up and been almost completely out of control. The pain is sometime unbearable and has brought me to tears. I am extremely frustrated because after 20 years of being positive I have been through so much and miraculously I have survived some really bad times, I mean really bad! Here and now at this stage, I have found a regime (my regular medications after four different tries) that seems to be holding the virus at bay so I'm happy to take the 6 pills. My base immune system is in decent order and better than it has been in 20 years. Actually it has been better than it is now but I won't complain with a count of 700 when I used to be able not to get above 300.
We have tried three different additional treatments for the neuropathy. Including: Neurotin, Lyrica, and amytriptyline. Unfortunately none of these medications worked. They were never intended to cure the problem and as I understand it now from my recent visit to a specialist in Sydney, this is not a problem that can be fixed merely something that we will attempt to manage pain wise and something I will have to live with for the rest of my life. I can do that as long as the pain is managed. We are actually trying one more new medication called Lamictal which is an anti-convulsant. All of the medications that I tried previously were of the same ilk. They interrupt the nerve messages which at this point are being sent and received incorrectly, hence the pain, numbness and burning sensation all at various times or at once. I also apparently have lost some feeling in my feet as I am hitting my feet hard enough on things like furniture to cause bruising. The problem being is I'm not feeling it when I hit my feet. So I'm going to have to be a bit more careful and aware.
So where is this long and self-loathing post heading? Well I guess I just wanted to vent some frustration and by putting this on paper as it may make me feel a tiny bit better. It's just really a huge kick in the head after this many years but I will get past this as I have done before. The only other kicker is I have had to start on pain management again which involves the use of Oxycontin (percodan). Because it is so strong and not to mention highly addictive I'm not really pleased with this part. I have given up driving temporarily because of the pain medication. I know in my heart and realistically this will all come into line but at the end of the day I sometime wonder just how much I can take before I say enough already!
I'll be fine I have before and I will again. I have the best and most wonderful partner in the world and he is always there for me (love you Jimmy)... Ok, enough of this whining lets move on and thank you for listening....
14 May 2006
We have pretty well decided to go to the UK for two weeks at the end of the year. It looks like we will be leaving on the 29th December and will be in London for New Years and then will spend the next few days there until James birthday on the 2nd. We are having the travel agent look into the flights and accommodations. The trip looks to include Scotland and Wales and possibly a stop over in Bangkok or Hong Kong depending what airline we take as we won't be flying United again after the last disaster we experienced with them.
Anyway, this is all in the preliminary stages of planning but I needed something to write about and this is it. I'll keep you posted as the plans become more solid.
12 May 2006
Four jobs I’ve had in my life:
- retail manager
- restaurant manager
- Health promotion officer
Four films I could watch over and over:
- Auntie Mame
- National Lampoon’s Christmas Vacation
- Priscilla Queen of the Desert
Four Places I have lived:
New Orleans, Louisiana Dallas, Texas Sydney, Australia Hobart, Tasmania
Four TV shows I LOVE to watch:
- The Golden Girls
- Will and Grace
- Discovery Channel (Travel)
Four places I have been on vacation:
New Zealand Boston Las Vegas San Francisco
Four places I’d like to go on vacation
UK Denmark Canada( Rockies) Amsterdam
Four websites I visit often:
Four of my favourite foods:
- Meat loaf
- Peanut butter pie
- Chicken Caesar Salad
Four places I would rather be right now:
- In bed
- With my husband
- On vacation
9 May 2006
For better or worse, it's the 25th Anniversary of AIDS. Not that it wasn't around longer than that obviously, but in 1981 AIDS was first officially recognized when the Centers for Disease Control called a press conference and reported the first cases of a rare pneumonia and a skin cancer among gay men. Neither disease was unknown, but the combination of the two implied a new syndrome. Read more at Proceed at your own risk…