A day to remember...

Today is a day that plays close to my mind and heart. I have now lived for 23 years with HIV and I am grateful for everyone of those years. I can remember back in 1986 when I first found out I was positive and the doctor told me I had six months to live. There were no medications available to help fight this disease at that time and I believed that my life would be over before I could explore and enjoy it more than I already had. Some how I got lucky because those 6 months came and went and then it became years. Through the years I went from surviving to being very ill. I lost many friends and acquaintances over those years. Somehow I kept going. I lost my partner of six years in 1993 just before the new miracle drugs were introduced in 1994. I have been on those medication ever since they became available. Every day is a constant reminder that I have to keep on going and that every day there is a battle being fought inside me. I lost another partner in 1998 even after the new drugs were introduced. I am very aware that this disease only wants one thing and that one thing is something I'm not willing to give iit.

At the same time millions of people around the world have and are facing the same day by day existence some doing it better than others. This disease is not going away and with no vaccine still to this day and on going newly diagnosed individuals occurring every day I am concerned that we have forgotten what this disease can do. How it can destroy lives, tear families apart and bring pain to so many. I don't mean to preach I just want people to remember that we still need to talk about HIV and to respect ourselves, our partners and one another. Respect yourself by using protection and keeping your self and your partners safe and well. Respect others and open your hearts and minds to lend someone a helping hand if they need one. Most importantly don't be afraid to talk as we need to keep the conversation going so we can continue to fight and maybe just maybe we will eventually win.

You can find out more information by clicking the World AIDS Day picture below. As I said be safe, take care and stay well and don't be afraid to talk about it.

better later then not at all...

I know that World AIDS day has passed but I was in Sydney seeing a specialist neurologist about my peripheral neuropathy, which was caused by HIV. It seems that in some cases the longer someone has HIV the virus can sometimes damage certain cells and in my case it is the nerve receptors in my feet. I will never be able to fix or cure this problem as it currently stands and the doctor says that unfortunately it will only get worse. After 21 years of living with HIV I thought that I had gotten to a point where I was winning. I have had really bad times and times where I almost died but I fought back and took control. I made sure that HIV did not define my life and that it would be something that is merely part of my life, albeit a constant part of my life. In the end here I am after all of this time and I feel like HIV has kicked me in the head just to remind me that it is still with me and if I want to win I will have to keep fighting. I'm not going to lie, it's a big ask.

Anyway, as a small reminder from the official site for World AIDS Day Australia. I leave you with this:

By 31 December 2006 there were 26,267 diagnoses of HIV infection in Australia. There were 10,125 diagnoses of AIDS and 6,723 deaths following AIDS had occurred. The annual number of new HIV diagnoses in Australia rose from 763 cases in 2000 to 998 in 2006 an increase of 31%.

Something to think about considering that these numbers are from a westernised country and not somewhere in Africa. We are not immune. We are affected and we are responsible for making a difference. I'm just sayin'...

Flashback: Who knew...

I came out to my parents in 1981 and for a short time our relationship became strained. We were both trying to come to terms with my coming out, both for very different reasons. At one point I did not speak to my parents for almost two years. Things started to get better slowly and with some concerted effort and a little time to breathe we began to start talking again. I came down with the flu in the fall of 1985. I thought maybe it would pass like any cold or flu, but for some reason it just kept hanging around. I wasn't throwing up and febrile all the time during those four weeks but I knew it was not normal to feel this way for so long. I just could not shake this flu off.

I was working as the General Manager of a local restaurant and putting in around 55 - 65 hours a week. The company I worked for had no health plan, so I could not afford to see a doctor. At the time I got sick the relationship with my parents had gotten better and we had come to a comfortable place. They did not like the fact that I was gay, but they learned that I was still their son just as I always had been, and would continue to be. I promised not to be too "gay" when I visited them as long as they tried to start to understand where I was coming from and give my the benefit of the doubt.

Anyway, my mom has worked for doctors all her life, and actually just recently stopped working but that's another story. I made a call to her one day while she was working and explained that I really needed to see a doctor and asked her if I could see the family doctor. Our family doctor for whom my mother worked for at the time had known our family for over 25 years, but he did not know that I was gay. I told my mom about having this flu and the fact that it just would let go and also suggested that I should probably be tested for HIV. The world was just really starting to talk about HIV/AIDS awareness back in 1985, and I was in a high-risk category. Mom at first disagreed because in asking for an HIV test I would have to disclose my lifestyle to the doctor. At the same time my mom knew I needed to see the doctor because we had to get a handle on whatever was wrong with me. I think at that point my mother had two problems. First, she still didn't want a lot of people to know that I was gay and secondly and most of all I think she did not want to find out the truth that I might be HIV positive. I didn't really want to find that out either. I ended up seeing the doctor without mentioning anything about HIV or about me being gay. The doctor did some routine blood test but not the test for HIV. He started me on some broad spectrum antibiotics to treat my symptoms, but I never really got better.

I kept having to see the doctor on and off every few weeks until April of 1986 and during that time he ran all sorts of test. In fact just about every test except the one for HIV. By April 1986 I had changed jobs and was now working as a manager for a major retail chain, working up to 65+ hours a week. I continued to be fatigued and I was losing weight faster than I could eat. I had also just started my second year of what would end up to be a four year relationship that wasn't going well and would end abruptly, so needless to say stress levels were very high. I decided to tell my mother that this had gone too far and that I really needed to be tested for HIV and that if she didn't want the family doctor to know then I would go to the clinic and have the test run, but I needed to know! My mom said she would rather see the family doctor than going to a clinic, so I did. When I saw the doctor I told him about my lifestyle and about my life in general. I also told him that there was a good chance that I could have been exposed to the virus. He was furious, not because of my lifestyle but because I had not told him earlier, in his eyes we had just wasted six months of my life when we could have tried treating my symptoms from another angle. Although treating HIV was harder then, than it is now, we still could have been doing other things to try and make me feel better. We decided to run the test!

Two weeks passed and finally late one afternoon, on a day that I luckily had off from work, the doctor called and told me he needed to see me in the office first thing in the morning. I don't claim to know everything, but at that point I knew what he had to say, and it would have to wait until the morning. The next day I was at the doctor's office bright and early. My mom was at work and she was in a good mood (I later found out that the doctor had not talked my mother until he talked to me, which is the professional and ethical way, even though as I said our families had been very close). So, I sat in the exam room, you know those cold sterile little rooms, waiting to hear the results of the test, and I already knew the answer. When the doctor came in the first thing he did was shake my hand and asked me how I was feeling. I told him I had been feeling better but not quite up to par yet. Then he said it "Tony the test came back positive." Reality hit I was HIV positive and I started to cry.

Now remember it was 1986 and at that time finding out you were HIV+ was death sentence. Like so many of my friends I didn't know where to begin in relation to what to do next. The biggest thought in my mind was how long would I have before the virus won. Of course the doctor couldn't answer that question, but at that time the thought process was that at most I would have probably five years if I was really lucky. I resigned my self to that fact and started to think what I really needed to do from that point. I never knew that in the end I would be able to say that in a little over a month from now, 2007, I will reach my 50th birthday. Unlike many I am excited to turn 50 and I'm extremely proud of what I have accomplished. I look forward to many more years but I never have and never will take for granted all the years that I have been afforded. Who knew...

Another year passes...

Twenty-one years ago in April 1986 my life changed forever. I figured that I would have said this about September 1981 (that's when I came out to everyone) but more important is that date in April 1986.

I went through hell and back when I first came out to my friends and family. I had spent so many years living a lie and in the end it almost killed me. When I finely told people I felt all of that pressure lift from my shoulders. I cruised along for the next five years exploring my new life and it was most definitely a new life for me. During that time I lost many of my old friends and relations with my family were strained, but they got better with time.

I was a young gay man living in the 1980's and the world was one of outrageous excess. I like so many others lived life like there was no tomorrow. We spent to much on clothes, cars, apartments and other material items. We partied to much, drugs and alcohol were our friend. Sex was just something you did, and you did it a lot. What we didn't do when we had that sex was we didn't use condoms. We didn't know we had too.

In 1981 there was a ripple of conversation beginning in a few large cities more specifically in San Francisco, LA and New York. That conversation became a large unknown as a clusters of gay men were suddenly getting sick and doing so very quickly. Those men were also dying from what ever was making them sick. In Dallas Texas we heard the rumors but no one was really sure what the truth was and unfortunately for many we continued to lead our lives to excess.

As the years progressed we named this disease. First back in 1981 it was called GRID (Gay Related Immune Deficiency) but health authorities soon realised that nearly half of the people identified with the syndrome were not homosexual men. In 1982, the CDC (Centre for Disease Control) introduced the term AIDS (Acquired Immune Deficiency Syndrome) to describe the newly recognized syndrome. In 1983 the virus that caused this syndrome was discovered by a French scientist and a year later an American scientist confirmed this discovery. However there was a huge debate as to who should be credited because each scientist called their virus something else even though they were talking about the same thing. Eventually in 1986 it was agreed that this new virus would be called HIV (Human Immunodeficiency Virus).

By 1986 the conversation about HIV was stronger than it had been but many of us were still living on the edge and occasionally we did not heed the new warnings that we need to use condoms. I lost so many friends in those first years between 1981 and 1986. It was a bad time in the gay community but at the same time it was a time of great commoradery because no one was going to look out for us as many thought we deserved this disease and that we desreved to die. They gay community started support groups and other organisations to help those who other were going to leave to die. I continued losing friends all the way up to 1998. I remember one month in 1984 I lost 30 friends and or acquaintances all in the same month.

I had the worst flu ever in September 1985 and was ill for the entire month. Even after the initial illness wore off I just never felt right. I went to see the doctor and he kept giving more antibiotics for various chest infections and strange inflammations. I had not come out to my doctor so he had no idea that there was even a remote chance that I could have been exposed to HIV. I alos was not sure I wanted to know if I had been exposed. By late March 1986 both the doctor and I were extremely frustrated trying to find out what was wrong with me. I finally decided that I had to tell him and that I thought it would be best that we run an HIV test. We did just that and a few weeks later (the test took longer in those days) we got the results.

I was HIV positive!

Like almost every person I have talked to and/or have know personally that received the same news, the first thing I did was cry! At that time finding out you were HIV+ meant you were going to die. There was no treatment to prolong life and there definitely was no cure. So where was I supposed to go from there? In answering that question it would take me way to long answer and it would make this post even longer that it is now. The short version is this. I worked until I got so sick and couldn't work anymore. I tried ever new drug that came out and some of them almost killed me. I tried to lead a normal life and found a partner but unfortunately he eventually died from complications of HIV and I buried him. I tried love again but he also died from complications of HIV and I buried another partner. I almost gave up but finally met someone who is still with me.

I am still living with HIV every day twenty-one years later. I take 12 pills a day to stay alive a;long with a positve attitude, which is sometimes very difficult, and I look forward to every day. So as another year passes I am grateful to be here but I am also aware that I have fought long and hard to be where I am and will continue to do so because I am worthy of living. If you are truly interested in reading all of the sorted details, you can do so here.

Remember...

On December 1 buy a red ribbon to support the fight against HIV. Thank you...